Dear World,
On the morning of December 24th I felt an unusual pain in my left hand between the thumb and forefinger. The pain increased and in the afternoon I got a high fever, at some point above 40 degrees Celsius or 104 degree Fahrenheit. I went to the emergency department and was hospitalized during the night between the 24th and 25th of December. On the afternoon of December 26th I underwent surgery to find out what was happening, and was then diagnosed with Necrotizing Fasciitis (the wikipedia article on NF gives a fair summary), caused by the common streptococcus bacteria (again see wikipedia article on Streptococcus). A popular name for the disease is flesh-eating bacteria. Necrotizing Fasciitis is a rare and aggresive infection, often deadly if left untreated, that can move through the body at speeds of a couple of centimeters per hour.
I have gone through 6 surgeries, leaving wounds all over my left hand and arm. I have felt afraid of what the disease will do to me, anxiety over what will happen in the future, confusion and uncertainty about how a disease like this can exist and that I get the right treatment since so little appears to be known about it. The feeling of loneliness and that nobody is helping, or even can help, has also been present. I have experienced pain. Even though pain is something I’m less afraid of (I have a back problem) compared to other feelings, I needed help from several pain killers. I’ve received normal Paracetamol, stronger NSAID’s (e.g., Ketorolac/Toradol), several Opioid pain-killers including Alfentanil/Rapifen, Tramadol/Tradolan, OxyContin/OxyNorm, and Morphine. After the first and second surgery, nothing helped and I was still screaming with pain and kicking the bed. After the first surgery, I received a local anesthetic (a plexus block). After the second surgery, the doctors did not want to masquerade my pain, because sign of pain indicate further growth of the infection, and I was given the pain-dissociative drug Ketamine/Ketalar and the stress-releasing Clonidine/Catapresan. Once the third surgery removed all of the infection, pain went down, and I experienced many positive feelings. I am very grateful to be alive. I felt a strong sense of inner power when I started to fight back against the decease. I find joy in even the simplest of things, like being able to drink water or seeing trees outside the window. I cried out of happiness when I saw our children’s room full of toys. I have learned many things about the human body, and I am curious by nature so I look forward to learn more. I hope to be able to draw strength from this incident, to help me prioritize better in my life.
My loving wife Åsa has gone through a nightmare as a consequence of my diagnosis. At day she had to cope with daily life taking care of our wonderful 1-year old daughter Ingrid and 3-year old boy Alfred. All three of them had various degrees of strep throat with fever, caused by the same bacteria — and anyone with young kids know how intense that alone can be. She gave me strength over the phone. She kept friends and relatives up to date about what happened, with the phone ringing all the time. She worked to get information out from the hospital about my status, sometimes being rudely treated and just being hanged up on. After a call with the doctor after the third surgery, when the infection had spread from the hand to the upper arm (5cm away from my torso), she started to plan for a life without me.
My last operation were on Thursday January 2nd and I left hospital the same day. I’m writing this on the Saturday of January 4rd, although some details and external links have been added after that. I have regained access to my arm and hand and doing rehab to regain muscle control, while my body is healing. I’m doing relaxation exercises to control pain and relax muscles, and took the last strong drug yesterday. Currently I take antibiotics (more precisely Clindamycin/Dalacin) and the common Paracetamol-based pain-killer Alvedon together with on-demand use of an also common NSAID containing Ibuprofen (Ipren). My wife and I were even out at a restaurant tonight.
Fortunately I was healthy when this started, and with bi-weekly training sessions for the last 2 years I was physically at my strongest peak in my 38 year old life (weighting 78kg or 170lb, height 182cm or 6 feet). I started working out to improve back issues, increase strength, and prepare for getting older. Exercise has never been my thing although I think it is fun to run medium distances (up to 10km).
I want thank everyone who helped me and our family through this, both professionally and personally, but I don’t know where to start. You know who you are. You are the reason I’m alive.
Naturally, I want to focus on getting well and spend time with my family now. I don’t yet know to what extent I will recover, but the prognosis is good. Don’t expect anything from me in the communities and organization that I’m active in (e.g., GNU, Debian, IETF, Yubico). I will come back as energy, time and priorities permits.
